In partnership with Klein Buendel, parents and medical experts, HPC has developed Pinpoint , a learning and tracking tool for teens with SCD. NIH Small Business grants (SBIR) facilitated this effort in a classic form of public-private partnership. The study’s Expert Advisory Board was formed by clinicians from institutions and nonprofit organizations including HOPE for SCD, UIC, Emory Healthcare, Children’s National, Marquette University College of Nursing, and the International Association of Sickle Cell Nurses and Professional Associates.
- Using gaming technology, Pinpoint is an online program that provides a safe, convenient tool for teens to learn about, track, assess, and communicate about their sickle cell pain with medical providers and parents.
- Pinpoint offers an innovative Pain Assessment Tool and a Pain Diary to log physical and emotional pain symptoms related to their blood disorder and all with the touch of a finger to describe and assess the intensity, duration, quality, nature, and location of their pain and report it to their parents and physician
- Pinpoint is a mobile friendly online web application and works on any smartphone or touch-screen device
- Teens can play games, watch videos, learn preventive health tips, and visit the Patient Stories section with real stories and inspirational messages told by other sickle cell patients