JUST RELEASED IN MARCH 2023!

Hope & Destiny 6th Edition (2023) provides clear-cut and in-depth information for the more than 100,000 Americans living with sickle cell disease. Written collaboratively by experts Allan Platt, PA-C, MMSc, Lewis Hsu, MD, PhD, and James Eckman, MD especially for parents and caregivers, this newly revised edition includes the latest information on: 

• Updated "Resources" chapter with new resources available to patients, parents and caregivers, including information about the new Pinpoint app for teens with SCD
• New chapter on COVID-19 and its impact on SCD
• Updated "Future Outlook" section with new clinical trials/research being worked on
• Updated Pain Management guidance for managing SCD pain
  

About the Hope & Destiny Sickle Cell Disease Book Series:
Sickle Cell Disease is the most common blood disorder in the U.S. Since first published, more than 75,000 books from the trusted HOPE and DESTINY sickle cell disease (SCD) series have been used by patients, caregivers, family members, students, and healthcare professionals around the globe. HOPE and DESTINY: The Adult Patient and Parent’s Guide to Sickle Cell Trait, and HOPE and DESTINY Jr.: The Adolescent’s Guide to Sickle Cell Disease, provide the most comprehensive education about sickle cell disease available today, including the latest and most accurate information about treatment regimens, medications, and medical insights to help patients and loved one’s cope with the physical, emotional, and psychological distress caused by SCD. HOPE and DESTINY is the nation’s best-selling book series on SCD because it keeps pace with changes in modern medicine while also providing comprehensive information in an easy-to-read and concise format.

Customer Reviews:
"...covers an extensive array of topics and explains them in comprehensible terms."
-- National Pain Foundation Book Review

"Our families really appreciate this book!"
-- Rachelle Nuss, M.D., Colorado Sickle Cell Treatment and Research Center

"This is a marvelous piece of work. I think it will be a tremendous asset to sickle cell resource libraries. More importantly, it has put into one volume information that is usually spread over many publications - and in terminology the lay person can read and understand, yet also be meaningful for healthcare providers as well."
-- Louise Dorn, R.N., Sickle Cell Center, University of Illinois Medical Center, Chicago

NEW REVISED 3RD EDITION NOW AVAILABLE FOR PRE-ORDER! 

ETA for pre-ordered books to be shipped to customers is June 19, 2023.

Share this beautiful hand-illustrated children's storybook written by Destiny Van Sciver, a healthcare professional and the mother of two children with sickle cell disease (SCD), a blood disorder affecting people of all ages all around the world. Through her new book, Destiny hopes to provide comfort and better understanding to other families like her own who's young children have also been diagnosed with SCD.

Sickle Cell Superheroes is a sweet fictional story about a young girl showing bravery, strength and determination to live her life to the fullest despite the obstacles she sometimes faces with her blood disorder. This book is a perfect resource for patients and families in hematology departments and sickle cell clinics, and also would make a wonderful addition to any primary K-12 school library, to teach elementary-aged students what it's like living with SCD which some of their classmates very likely have.

"My name is Kenya, and I am a sickle cell superhero. Did you know all sickle cell superheroes have sickle cell disease and share the same fight, even though they have different stories? This is my story, where the sun rises every morning and I become a warrior just like you. What's your story?"

REVIEWS:

"I received the copy of the book I ordered, Sickle Cell Superheroes, which I understand is published by HPC International Inc. I think the book is wonderful, the content well suited for a younger child, and the illustrations are beautiful.  I have passed the book along to our Child Life Specialist that ordered it, along with your website information.  I imagine she may take a look at your website to see what other titles you carry. Thank you for your follow-up call and I wish you a lovely day!" 

-- Dana Stroth, Administrative Assistant, M Health Fairview, University of Minnesota Masonic Children's Hospital, Child and Family Life Services

LEARN MORE ABOUT THE AUTHOR

https://nz.finance.yahoo.com/amphtml/news/meet-9-11-old-sisters-201659568.html 

https://www.dailybreeze.com/2020/11/12/inglewood-parents-hope-pray-daughters-receive-bone-marrow-transplant/ 

https://losangeles.cbslocal.com/2020/10/15/inglewood-kimora-kylie-van-sciver-sickle-cell-disease-bone-marrow-donor/ 

Rescued from a small fishing boat off the coast of Vietnam in 1975, Kim-Doan Katrina Nguyen and her family soon found themselves starting over in America, with little more than their work ethic and their faith in God to sustain them. Bolstered by her beliefs and her desire to thrive, Nguyen ultimately realized her dream of becoming a physician, specializing in pediatric gastroenterology. Today, her deep faith is evident in her ever present mission to help others, no matter the circumstance. Live to Give is Nguyen’s reflection on a life of determination and devotion, marked most importantly by her gifts of time, talent, and treasure to make the world around her a better place.

Also available in paperback edition! 

View the author's blog Catholic Medical News and Views to read her most recently posted articles!

https://foundation.mycatholicdoctor.com/resources/ 

Watch this EWTN radio interview on Doctor Doctor from December 2020 featuring author Dr. Nguyen on childhood obesity and what her nonprofit organization, Faithful-2-Fitness, is doing to help teach and inspire healthier behaviors for children and their families.   

https://soundcloud.com/user-546435917/dd-190-childhood-obesity

Read this article published in the December 2020 issue of Legatus magazine by author Dr. Nguyen on childhood obesity. 

https://legatus.org/news/battling-the-bulge-trimming-obesity-in-children

About Hope & Destiny Jr. 2nd Edition Workbook Learning Guide (2019):
LIMITED QUANTITY REMAINING! - Hope and Destiny Jr. Learning Guide and Workbook 2nd edition is newly revised as a 48-page workbook. Specifically for teenage SCD patients ages 13-18, the Learning Guide is an interactive companion piece to Hope & Destiny, Jr. and helps young adults understand their disease through identifying different types of pain, tracking symptoms, learning important medical vocabulary and recognizing side-effects of treatments and medications. In addition, the workbook offers learning activities and journal pages to write about their unique challenges, questions and medical changes - all meant to encourage improved knowledge about their disease and more open dialogue with their parents, doctors and other caregivers.

A new edition of the Hope & Destiny Jr. Workbook Learning Guide is set to be released by September 2023. Check back to HPC's store for more updates! 

About the Hope & Destiny Sickle Cell Disease Book Series:
Sickle cell disease (SCD) is the most common blood disorder in the United States. Since first published, more than 75,000 books from the trusted HOPE and DESTINY sickle cell disease (SCD) series have been used by patients, caregivers, family members, students, and healthcare professionals around the globe. HOPE and DESTINY: The Adult Patient and Parent’s Guide to Sickle Cell Trait, and HOPE and DESTINY Jr.: The Adolescent’s Guide to Sickle Cell Disease, provide the most comprehensive education about sickle cell disease available today, including the latest and most accurate information about treatment regimens, medications, and medical insights to help patients and loved one’s cope with the physical, emotional, and psychological distress caused by SCD. HOPE and DESTINY is the nation’s best-selling book series on SCD because it keeps pace with changes in modern medicine while also providing comprehensive information in an easy-to-read and concise format.

PAPERBACK EDITION

“My family’s refugee experience in the United States—having to rebuild our lives from nothing—is what drives me to help the poor as often as I am capable.”

Rescued from a small fishing boat off the coast of Vietnam in 1975, Kim-Doan Katrina Nguyen and her family soon found themselves starting over in America, with little more than their work ethic and their faith in God to sustain them. Bolstered by her beliefs and her desire to thrive, Nguyen ultimately realized her dream of becoming a physician, specializing in pediatric gastroenterology. Today, her deep faith is evident in her ever present mission to help others, no matter the circumstance. Live to Give is Nguyen’s reflection on a life of determination and devotion, marked most importantly by her gifts of time, talent, and treasure to make the world around her a better place.

Also available in brand new e-book edition! 

View the author's blog Catholic Medical News and Views to read her most recently posted articles!

https://foundation.mycatholicdoctor.com/resources/ 

Watch this EWTN radio interview on Doctor Doctor from December 2020 featuring author Dr. Nguyen on childhood obesity and what her nonprofit organization, Faithful-2-Fitness, is doing to help teach and inspire healthier behaviors for children and their families.   

https://soundcloud.com/user-546435917/dd-190-childhood-obesity

Read this article published in the December 2020 issue of Legatus magazine by author Dr. Nguyen on childhood obesity. 

(CURRENTLY OUT OF STOCK, RESTOCK DATE ETA = LATE JUNE 30, 2023)

A Handbook for Parents & Caregivers

Living Well with Sickle Cell will give you the knowledge and confidence you need to take on a sickle cell diagnosis and advocate for your child’s health and well-being.

Sickle Cell Disease is well known for the pain that it causes. What isn’t widely researched is the emotional stress that families go through due to the unpredictable episodes of pain, hospitalizations, risk of death, and more. Treatment options are few, and curative therapies like bone marrow transplant and gene therapy are promising, but not yet widely accessible. We must do something now to protect those we love. Knowledge truly is power, education is the key, and advocacy is the force to defeat this disease. Living Well with Sickle Cell provides that knowledge and support. Together, we can provide the advocacy needed for a healthier future. Living Well with Sickle Cell will give you the knowledge and confidence you need to take on a sickle cell diagnosis and advocate for your child’s health and well-being.

"Living Well with Sickle Cell: A Handbook for Parents and Caregivers is an outstanding resource for families. We supply this handbook to every new family who comes to our sickle cell clinic. It is an extremely well grounded and helpful toolkit for what can otherwise be an overwhelming experience for families. This handbook is often used as a resource over the coming years. Every new family should have one!" 

--Dr. Cheryl A. Hillery, MD, Director of the Comprehensive Pediatric Sickle Cell Program at UPMC Children's Hospital of Pittsburgh

Written by the Children's Sickle Cell Foundation (CSCF).

Overview: Doctors today know the important health benefits their patients can achieve from journaling about a medical condition. Not only can our new journal help sickle cell patients to write about their thoughts and feelings, it has also been designed to serve as a useful tool for doctors by prompting patients to record medication side effects, their personal experience with the disease, and even questions they want to ask at their next office visit.

Journaling is PROVEN to reduce stress, improve clarity of thoughts & have a positive impact on patient well-being!

My Sickle Cell Journal is a mini pocket-sized journal made specifically for sickle cell patients of all ages to use to help manage and track their chronic blood disorder, which includes a section to record your personal patient MEDICAL HISTORY as well as a section to document SIDE EFFECTS from prescription medications you’re taking and treatments you’re undergoing. 

Journal dimensions are 4" x 6".

(LIMITED INVENTORY REMAINING)

Also available in e-book format!

E-book for Kindle, Smartphones & Tablets (comes in both EPUB and MOBI formats): https://www.hpcinternationalinc.com/Bookstore/Product/9780990428381M

Pair this valuable hand-illustrated book on the basics of sickle cell disease with your newborn screening program, to provide families with trusted information when their new baby is diagnosed with the SCD blood disorder.

A perfect beginning to anyone's first education about sickle cell disease (SCD), this book lays the foundation for basic knowledge about SCD, what it is, how it works and most importantly how to handle the news of a new sickle cell diagnosis. ALSO AVAILABLE IN AN E-BOOK EDITION! Sickle What? is an educational book written in simple language with helpful illustrations to explain complex medical concepts and terminology. Sickle What? arms patients and parents of newly diagnosed children with the knowledge they need to understand and manage sickle cell disease (SCD). Information about what SCD is and how a person gets it is broken down into easy-to-understand terms to help parents better understand and be able to explain SCD to a child - empowering the child to understand what is actually happening inside their body. Sickle What? shows readers how to read and understand a lab report, what action steps to take when pain occurs and the importance of asking questions and communicating openly with doctors.

Also available in paperback format!

Paperback edition: https://www.hpcinternationalinc.com/Bookstore/Product/9780977316014

Pair this valuable hand-illustrated book on the basics of sickle cell disease with your newborn screening program, to provide families with trusted information when their new baby is diagnosed with the SCD blood disorder.

A perfect beginning to anyone's first education about sickle cell disease (SCD), this book lays the foundation for basic knowledge about SCD, what it is, how it works and most importantly how to handle the news of a new sickle cell diagnosis. ALSO AVAILABLE IN AN E-BOOK EDITION! Sickle What? is an educational book written in simple language with helpful illustrations to explain complex medical concepts and terminology. Sickle What? arms patients and parents of newly diagnosed children with the knowledge they need to understand and manage sickle cell disease (SCD). Information about what SCD is and how a person gets it is broken down into easy-to-understand terms to help parents better understand and be able to explain SCD to a child - empowering the child to understand what is actually happening inside their body. Sickle What? shows readers how to read and understand a lab report, what action steps to take when pain occurs and the importance of asking questions and communicating openly with doctors.